tomwrightdreamer

Musings on creativity from Yorkshire's Gangliest Diabetic Buddhist Theatre Director

Month: April, 2018

8291

WARNING: I did almost no research on this one; that’s what happens if you write a play in a day – research and drafting fall by the way-side. But I think the idea holds true, even if the details are sketchy.

Also – swears

8291

KELLY, white, early 40s, is clearing up her breakfast in a family kitchen.

KELLY               Laura! You’ll be late for netball!

SIMON, a black man in his early 40s comes in, sifting post. Sits. Pours himself some sugary cereal and munches as he sifts. 

KELLY               Anything exciting?

SIMON            Bil, bill, circular, pizza menu, bill – ooh!

KELLY               ‘Ooh?’

SIMON            It’s come!

KELLY               What’s has?

SIMON            Our future! The deepest secrets hidden in our lives!

KELLY               Sounds awful. What are you talking about?

SIMON            You remember last month when I got you to do those mouth swabs?

KELLY               Yes?

SIMON            Well the results are in! The secrets of our DNA!

KELLY               Simon, darling, this will come as a shocking surprise to you but I wasn’t really listening when we did the swabs – I just went along with it to shut you up.

SIMON            I’d never have guessed!

KELLY               So, do you want to take it from the top?

SIMON            From the saliva sample I sent they can analyse your genetic make up – they map your whole genome and run it against they’re database and they tell you things about yourself.

KELLY               Such as?

SIMON            Well. . . gene 7912 mine says that genetically my heart is likely to be strong. I have 2413 a slight tendency towards weight gain.

Kelly reaches over the table and slides his cereal bowl away from him.

                        Ha, ha. (Pause) Oh. Oh no.

KELLY               What?

SIMON            Oh God.

KELLY               What?!

SIMON            Oh my –

KELLY               WHAT IS IT YOU ARSE?!

SIMON            5028. I have a mild intolerance for coffee. I think my life is over.

KELLY              Mild intolerance versus never being awake? Tough call!

SIMON            I will find a way to soldier on.

KELLY               Alright, then Professor, let’s see mine.

SIMON            Well, it says here that genetically you are beautiful but very annoying.

KELLY snatches it from him.

KELLY               7823. Relatively tall. Nailed it. 3103 slight hypertension – (Pushes her own coffee away from her.) 5067 green eyes. You paid how much for this?

SIMON            Doesn’t it say ‘green eyes, exceptionally beautiful.’

KELLY               Creep. Well, according to this I am genetically average in every conceivable way. How dull.

SIMON            Not to me you’re not!

KELLY               Thank you!

SIMON            You are definitely never dull.

She thumps him playfully.

Let’s see what Laura’s says.

KELLY               You did Laura?

SIMON            Yes.

KELLY               Without asking her?

SIMON            Well, she said yes to a swab.

KELLY               But did you explain what it was for?

SIMON            No, wanted it to be a surprise.

KELLY               Shouldn’t we wait till she comes down.

SIMON            C’mon, just a peak. Don’t you want scientific confirmation that our daughter is extraordinary?

KELLY               I don’t need a piece of paper to tell me that.

SIMON            C’mon. Let’s have a look!

KELLY               Alright, fine – get on with it.

SIMON            7823 – relatively tall.

KELLY               Boom! That’s down to me.

SIMON            5067 – green eyes.

KELLY               Double boom! Told you she took after me. Mama’s got strong genes.

SIMON            Oh god, this is a long one. 8291. ‘The protein encoded by this gene belongs to the ferlin family and is a skeletal muscle protein found associated with the sarcolemma. It is involved in muscle contraction and contains C2 domains that play a role in calcium-mediated membrane fusion events, suggesting that it may be involved in membrane regeneration and repair. In addition, the protein encoded by this gene binds caveolin-3, a skeletal muscle membrane protein which is important in the formation of caveolae. Specific mutations in this gene have been shown to cause autosomal recessive limb girdle muscular dystrophy type 2B.’

KELLY               What the fuck?

SIMON            Erm. . .

KELLY               No, seriously, what the fuck does that mean?

SIMON            Mutation in 8291 causes autosomal recessive limb girdle muscular dystrophy type 2B.

 

KELLY               What the fuck is that!

SIMON            Hang on! (Rifles through the papers.) Here it is! Limb-girdle muscular dystrophy, type 2B is one of many forms of limb-girdle muscular dystrophy, a group of disorders that affect the voluntary muscles of the hips and shoulders. LGMD2B is characterized by early weakness and wasting (atrophy) of the pelvic and shoulder girdle muscles in adolescence or young adulthood. The age of onset typically ranges from 15 to 35 years, and legs are usually affected first. Symptoms include the inability to tiptoe and difficulty walking and running.  Cardiac (heart) and respiratory involvement is uncommon. It is usually slowly progressive, with need of a wheelchair 10 to 20 years after onset.

Silence 

LAURA, mixed-race, 15, bounds on in her netball costume.

LAURA             Come on mum! We’ll be late!

Kisses Simon.

                        See you later Dad!

Grabs the car keys from a hook on the wall.

                        C’mon mum, I’ll be in the car!

She heads out. Kelly and Simon sit, unmoving.

End.

Now that we’re at the end I can unpack some of my thinking on this – reading it back I wondered if it was ableist, making the diagnosis of a condition into a tragedy. The day nine year-old me became diabetic felt like a tragedy. But to 40 year old me it’s more of a constant low-level irritation. Although I’d definitely not swap my diabetes for the condition here, I am very sure that there are people with Limb-girdle muscular dystrophy, type 2B who are living full and happy lives and making a difference in the world. I’m sure there are others with the condition who feel they could be living full and happy lives if society offered them better support. In short, I think the snap-shot here is true – a diagnosis like this feels like a bereavement, a loss which must be mourned. But it would be interesting to revisit our three characters over the following years and see if that feeling evolves into something else.

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Boundary Issues

KIMMY is sitting on a JESSICA’s bed in student digs. JESS has put some effort into making her room feel at home – there’s study books but also posters, cushions, cuddly toys, maybe a pot plant. KIMMY is painting her nails.

JESS comes in, obviously having had a bad day, throws her bag down on the desk (which is line of sight from the door), then turns with a sigh – sees Kimmy, and jumps.

JESS:                Agh!

KIMMY:           Hey Jessie! Good day?

JESS:                You startled me!

KIMMY:           I came in to borrow your nail polish. That’s okay, right?

JESS:                Oh. That’s why I keep running out. Beat. Is that my t-shirt?

KIMMY:           Yeah, my stuff’s in the wash. Figured you wouldn’t mind.

JESS:                Right.

KIMMY:           So how was the meeting today?

JESS:                Yeah, the Prof was riding me a bit. About the last essay being late and all. Like, it’s fine, it’s just a bit. . . you know.

KIMMY:           Yeah. He’s a cock.

JESS:                I guess. I think it’s more about me getting my shit together.

KIMMY:           I suppose. But there’s no need for him to be mean about it.

JESS:                Yeah.

Silence

JESS:                I saw the groups for the practical module were up.

KIMMY:           Cool huh?

JESS:                Us being in a group together?

KIMMY:           Yeah!

JESS:                The other were saying that they were asked who they wanted to be in groups with.

KIMMY:           Yeah, it was that day you were all full of lurgy. So I signed us up together. Didn’t want to disturb you.

JESS:                Right.

Silence.

KIMMY:           What are we doing tonight then?

JESS:                Beat. Well, I’ve been invited to a party.

KIMMY:           Oooh! Where is it?

JESS:                Over in Goldeney.

KIMMY:           Oooh – Goldeney. What should I wear?

JESS:                Huh?

KIMMY:           I mean all my stuff is in the wash. Ooh – can I borrow your red dress.

JESS:                I’m wearing my red dress.

KIMMY:           That’s fine. I like your blue one too. What time Is it?

JESS:                Err, sorry, Kim, like, I’m going to the party, not ‘we are going to the party.’

KIMMY:           Beat. Sorry?

JESS:                Mark asked me. To go. With him. Me and Mark.

KIMMY:           Oh. Beat. Oh. Beat. Well, that’s fine. I’ll come with you and then just hang out till your done.

JESS:                I don’t think that’s going to work Kimmy. I’m going to be with Mark the whole time.

KIMMY:           Well I’m sure you won’t be with him the whole time, you’ll need someone to hang with when he’s talking to his friends.

JESS:                I’m not sure he’s planning on talking with his friends.

KIMMY:           Yeah, that’s what boys are like. You’ll need me. I’ll be your wing woman.

JESS:                Errr, or you could find something else to do?

KIMMY:           Like what?

JESS:                You could go down the union.

KIMMY:           Nah, don’t like it.

JESS:                Or Watershed, I heard some of the gang from the department are heading down there.

KIMMY:           Nah, don’t like them.

JESS:                Or you could catch up on Netflix.

KIMMY:           Nah, it’s not as good without you. I’d sooner come with you. It will be cool.

JESS:                Look, err Kimmy. . .

Kimmy does pleading eyes.

JESS:                Err, okay, but don’t get all moody when I’m spending time with Mark.

KIMMY:           That’s okay. I’m sure you wouldn’t abandon me completely.

Pause.

JESS:                Right, better go shower.

KIMMY:           Oh and Jess!

JESS:                Huh?

KIMMY:           You should wear your blue dress. Brings out your eyes.

JESS:                Okay.

JESS leaves for the shower.

KIMMY:           Painting her nails. And then I can wear your red one.

End